This was posted on I Am Pro-Life's facebook page.
I thought it was so precious and a wonderful reminder.
Pearl Joy Brown is the third child of Ruth and Eric Brown. At
their 20-week prenatal appointment, Pearl was diagnosed with alobar
holoprosencephaly (HPE), a neural disease with low chances of survival.
Despite
a grim prognosis and a doctor’s encouragement to induce labor and end
the pregnancy, the Browns opted to embrace life and hope and carry Baby
Pearl to term.
Sweet
Pearl, I’ll never forget that December evening I found out you were
coming. I was in Indiana, helping the David Crowder Band finish up the
last of their shows, and your mother called to let me know she was
pregnant.
I remember running backstage to tell the guys, though they were
literally walking on stage when I shouted it to them. The confusion on
their faces spoke volumes. Why couldn’t I wait until we were on the bus
that night to share the news? They were kind of in the middle of
something! Seems we were both a little over-enthused at the news of your
conception! It makes sense now.
I’ll
spare you all of the medical details of what happened while you were
inside your mother’s belly, as I can imagine you’re tired of hearing
about that. We spent several months preparing to meet you and say
goodbye all in the same breath.
To
be honest, we didn’t even buy any of the normal baby things for you,
though we did already fill out the paperwork with the funeral home so
all that had to be filled in was the dates and times.
We spent more time preparing ourselves for what it was going to feel
like when the funeral home came to pick you up at the hospital than we
did wondering how on earth we would care for you…perhaps a tactical
error on our part. We’re figuring it out though. Thanks for being
patient.
And
then on July 26th, we were given the news that you needed to be born
immediately, as things were looking a bit rough for you in Mommie’s
belly. The conversation that day that we had with your brother and
sister was one of the hardest conversations we’ve ever had. I remember
going to Suzannah’s house and sitting with them both to tell them that
the doctors didn’t expect you to come home with us.
Your
brother was perplexed and asked if you were so sick that you would
probably die. I told him the truth and he melted.
You are so loved by your siblings, and have been since long before you
were born. Even now, they will often come put their cheek next to your
mouth to see if you are breathing, though they try very hard to not give
you any germs. I hope that you can somehow feel that love.
We
were told that if you made it through delivery, the moment of your
birth would be your strongest and that as your systems tried to start up
and your brain wouldn’t tell them how to function, your body would
start shutting down.
And then the milestones started stacking up. You made it through birth,
so we cut the cord. Your heart had a little trouble at first, so your
little chest got a massage. And then you were breathing, so we took
pictures, and you were still going. So…off to the NICU!
That
was by far the most amazing night of my life. We watched the hours
stack up and you thrived. Each hour was a miracle and still is. Hours
turned into days and people from all over were driving and flying in to
meet you.
Doctors would come to see you, and they would close the door and start
crying. Family and friends did the same thing. Even employees from other
parts of the hospital would come in, close the door, and cry by just
meeting you.
So many of these people had prayed for you for weeks and weeks and there
you were. Alive. Engaging. Beautiful… a miracle, in its most certain
form.
On
September 14, you turned 7 weeks old. I don’t know if you know this or
not, but every Friday someone brings cupcakes over to our little house
and we celebrate your life and we celebrate the Giver of that life.
One day, you will meet Him, and much of this will make sense to you.
Sweet girl, you have turned our world, and arguably the world of our
many others, upside down in the most beautiful way.
You
have taught us all what it means to be carried through life. You have
taught me that self-reliance is a lie, and you have taught me clearly
how dependent I am.
Thank God it’s not up to me. I never would have chosen this life for
either of us, but it’s so much better than anything we would have chosen
for ourselves.
Thank you, baby girl. You are loved more than you will ever know here,
and more importantly you are shining brightly the Light of the world…to
the world. I am so proud of you!
Love,
Your Daddy
You guys made me cry!! so good!
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